2016 Research Award

"Virtual reality disability training: A technology comparison impact investigation”

Lead researcher:

Dr Laurianne Sitbon
Queensland University of Technology, School of Electrical Engineering and Computer Science
Co-investigators:

Dr Ross Andrew Brown and Prof Margot Brereton
Queensland University of Technology, School of Electrical Engineering and Computer Science

Grant amount:

$39,993

Previous research between the Endeavour Foundation and Queensland University of Technology has yielded a three dimensional (3D) working model of a train station in Brisbane as an educational aid for people with disabilities. This has been successfully trialled as a virtual reality experience for clients. This project will extend this previous work in two ways: (1) by utilising new 360 degree video techniques to generate immersive video replays of ticket purchasing scenarios, and (2) evaluating these new video techniques against the other 3D virtual reality systems with regards to a number of qualitative criteria (e.g., usability, user acceptance, design requirements for future systems, cost).

2015 Research Award

“The development and implementation of a framework for evaluating organisational person-centredness by people with intellectual disability: An Inclusive Research Approach”

Lead researcher:

Professor Patricia O’Brien
University of Sydney, Centre for Disability Studies

Co-investigators:

Dr Marie Knox (University of Sydney, Centre for Disability Studies)
Members of the Inclusive Research Network:

  • Ms Susan Adrian
  • Ms Jodie Airey
  • Ms Sarah Butler
  • Mr Alex Butters
  • Ms Emma Doukakis
  • Ms Suzie Jessep
  • Mr Jack Kelly
  • Ms Lesley Lewis
  • Ms Megan Noyeaux
  • Mr Bruce O’Brien
  • Ms Sue Popplewell
  • Mr Mark Walters
  • Ms Leigh Worrall
  • Ms Elizabeth Young
All at: University of Sydney, Centre for Disability Studies

Grant amount:

$39,840

This project will develop a Person Centred Evaluative Framework built on the experiential knowledge of people with intellectual disability. The Framework will be used to assess the extent of person-centredness within service organisations. The Inclusive Research Network (IRN) is a team of researchers with and without intellectual disability located at the Centre for Disability Studies. The IRN, following training and with support, will use the Framework to “quality check” the closeness of the person-centredness fit between what is observed within the partner organisations and what is desired by the participants with intellectual disability. The study will enable organisations to learn from the participants with intellectual disability their perspective on person-centredness, and its fit with current practices.

2014 Research Award

“How I’m feeling: Pilot study of a web-based self-report measure for depression and anxiety in adolescents with intellectual disability”

Lead researcher:

Associate Professor Kylie Gray
Monash University, Centre for Developmental Psychiatry and Psychology

Co-investigators:

Dr Glenn Melvin (Monash University)
Emeritus Professor Bruce Tonge (Monash University)

Grant amount:

$39,790

The co-morbidity of intellectual disability with mental health issues occurs commonly but is frequently under-diagnosed due to the presence of behaviours associated with an intellectual disability that may mask symptoms of mental health issues. This study will pilot a newly developed self-report measure delivered via a tablet computer and designed to assist with identifying symptoms of depression and anxiety in adolescents with mild-moderate intellectual disability. If successfully evaluated, this self-report measure will improve the capacity of clinicians to detect anxiety and depression in a currently underserved population.

2013 Research Award

“End of life care for people with intellectual disability”

Lead researcher:

Professor Rafat Hussain
The University of New England, School of Rural Medicine

Co-investigators:

Professor Trevor Parmenter (The University of Sydney)
Dr Stuart Wark (The University of New England)

Grant amount:

$40,000

End of life care should facilitate an individual to remain living at home until their death; however, many complex legal and medical issues come into play when supporting someone with impaired capacity to remain at home until their death. There is a paucity of research about palliative care for this population, the needs of carers (both paid and unpaid), and appropriate bereavement support. This study will: gain feedback from key informants in rural and metropolitan locations regarding the provision of end of life care for people with an intellectual disability; determine what changes to policy and practice may facilitate better outcomes; and pilot a support framework.

2012 Research Award

“Engagement with people with intellectual disabilities and their carers: Self-directed care coordination and competency development”

Lead researcher:

Associate Professor Heidi Muenchberger
Griffith University, Griffith Health Institute & CONROD, Population and Social Health Research Program

Co-investigators:

Michelle Crozier (Griffith University)
Dr Carolyn Ehrlich (Griffith University)
Anna Cox (Youngcare)

Grant amount:

$30,000

This project addresses issues relating to individualised funding and person-centred support, specifically the role of people with a disability and families in the purchase and management of their support. This study will: explore how well current support processes address the needs of adults with an intellectual disability and their families. It will also develop and test a skills competency package for client-led coordination of support that can be used by people with a disability, families and service providers to help manage and coordinate the supports they receive.

Key Project Outputs:

Crozier, M., & Muenchberger, H. (2013). 'It's your problem, not mine': Does competence have anything to do with desire and aspiration to self-direct? Australian Health Review, 37(5), 621-623. Available here.

Crozier, M., Muenchberger, H., Colley, J., & Ehrlich, C. (2013). The disability self-direction movement: Considering the benefits and challenges for an Australian response. Australian Journal of Social Issues, 48(4), 455-471. Available here.

Crozier, M., Muenchberger, H., Ehrlich, C. & Coley, J H. (2012). Self-directed Support: A state, national, international understanding. Griffith University. Download here.

Crozier, M., & Muenchberger, H. (2013). My Choices Tree. Download here.

2016 Student Award

“The development of an anxiety program for adults on the autism spectrum”

Applicant:

Cindy Nicollet, PhD candidate
University of Queensland, the Queensland Centre for Intellectual and Developmental Disability

Supervisors:

Ms Anna Urbanowisz and Prof Nicholas Lennox
University of Queensland, the Queensland Centre for Intellectual and Developmental Disability
Assoc Prof Kate Sofronoff, University of Queensland, School of Psychology

Dr Renae Beaumont
University of Queensland, the Cooperative Research Centre for Living with Autism

Grant amount:

$4,240

The experience of an anxiety disorder, which can occur in up to 84% of individuals on the autism spectrum, impacts quality of life above and beyond the impact of the characteristics of autism spectrum disorder. This project will develop and trial an anxiety treatment program for adults on the autism spectrum that adopts an Acceptance and Commitment Therapy (ACT) framework. Previous psychological interventions using a cognitive behaviour therapy (CBT) framework have limited evidence of treatment effectiveness for people with autism spectrum disorder. Funding from this award will be used to fund the creation of several animation videos to be used in the ACT treatment program. These videos will be created in collaboration with people with autism spectrum disorder.

2015 Student Award

“Yarning about Disability”

Applicant:

Caris Jalla, Masters candidate
Curtin University, School of Psychology and Speech Pathology

Grant amount:

$5,000

This research examines perceptions of health, wellbeing and disability by Aboriginal children and young people both with and without a diagnosed disability, as collected through yarning circles, a validated, culturally appropriate research methodology. The grant will fund the creation of a children’s storybook as an age and culturally appropriate method of research dissemination. The storybook will draw on narrations from Aboriginal participants with disabilities and will be developed with guidance from the participants and an Aboriginal Community Reference Group.

Key Project Outputs:
The storybook ‘Yarning About Disability’ by Caris Jalla is available online in text and audio versions here, and via You Tube here.

“Does home-based Occupational Therapy reduce carer burden and slow functional decline in adults with Down syndrome and Alzheimer’s type dementia disease?”

Applicant:

Sujatha Raj, PhD Candidate
University of South Australia, School of Health Sciences

Grant amount:

$4,710.48

Adults with Down syndrome have an increased risk of developing younger-onset Alzheimer’s disease type of dementia due to their chromosomal anomaly. The Occupational Therapy (OT) management for an adult with Down syndrome and Alzheimer’s disease includes promoting and maintaining their functional independence and reducing the caregiver’s burden. However, there are limited studies investigating the effectiveness of OT intervention for this population. This study is an international cross-sectional survey among occupational therapists, which aims to understand the scope of OT practice with this population, and inform an OT intervention program for adults with Down syndrome and Alzheimer’s disease.

2014 Student Award

“Disability employment practices in the Australian retail sector"

Applicant:

Katherine Moore, PhD candidate
Queensland University of Technology

Grant amount:

$5,000

The persistent low workforce participation rate of people with a disability in Australia has become a priority for the Australian Government. This research will examine how organisations embed disability employment practices within their social structures by exploring a case study of a large Australian holding company currently employing people with a disability. The findings of the research will contribute to understandings of everyday practices around disability employment within organisational settings.

Key Project Outputs:
Moore, K. (2015). Disability employment practices in the Australian retail sector. PhD thesis, Queensland University of Technology. Download full-text version here.

2013 Student Awards

“Supporting successful ageing and ageing in place for people with an intellectual disability"

Applicant:

Miranda Cannon, PhD Candidate
The University of New England, School of Rural Medicine

Grant amount:

$5,000

This project will examine “successful ageing" for people with an intellectual disability through an exploration of the individual's own understanding and experiences of their health, well-being and ageing. Of particular interest are the measures which may enhance the viability of ageing-in-place in order to prevent premature institutionalisation into residential aged care. This study will undertake semi-structured interviews in urban and rural settings in NSW and QLD. It will seek to develop recommendations for enhancing the capacity of disability and aged care services to support successful ageing for this population.

“Neuroimaging oxytocin modulated plasticity, response markers and implication for treatment of Autism Spectrum Disorders and co-morbid intellectual disability"

Applicant:

Ben Johnston, PhD Candidate
The University of Sydney, Brain and Mind Research Institute

Grant amount:

$5,000

This project examines the neurobiology of children with autism and co-morbid intellectual disability using Magnetic Resonance Imaging (MRI). This study will develop a pharmacological treatment which directly targets neural abnormalities that underlie symptoms of social dysfunction in this population. The other major aim – for which the Endowment Challenge Fund award was received – is to develop a training protocol using a mock MRI scanner and educational materials to desensitise children with autism aged 3-12 years, allowing them to undertake MRI scanning without the use of risky and invasive sedatives and/or anaesthesia.

2012 Student Awards

“Cognitive disability, diversion and the criminal law: Disrupting the criminalisation of people with cognitive disability in the criminal justice system"

Applicant:

Linda Steele, PhD candidate
The University of Sydney, Sydney Law School

Grant amount:

$5,000

Section 32 of the Mental Health (Forensic Provisions) Act 1990 (NSW) enables a defendant with cognitive or intellectual disability to have his or her criminal charges dismissed conditional upon engagement with disability or human services for 6 months. This study will focus on developing a more nuanced understanding of how Section 32 can challenge criminalisation of this vulnerable group by addressing the broader contexts that contribute to continuous cycling through the criminal justice system (notably, social marginalisation, diagnostic complexities, disability service system complexities, and discriminatory attitudes).

Key Project Outputs:
Steele, L., Dowse, L. & Trofimovs, J. (2013). ‘A Report on the Human and Criminal Justice Pathways of People Diagnosed with Mental Health Disorder and Cognitive Disability in the Criminal Justice System Who Have Received Orders Pursuant to Section 32 of the Mental Health (Forensic Provisions) Act 1990 (NSW)’. Available here.
Steele, L., Dowse, L. & Trofimovs, J., (2016). ‘Who is Diverted?: Moving Beyond Diagnosed Impairment Towards a Social and Political Analysis of Diversion’ Sydney Law Review, 38(2), 179-206. Available here.

“Making the Transition to Adulthood: Perspectives and experiences of young people with an intellectual disability who have exited non-kinship foster care"

Applicant:

Sarah MacDonald, PhD candidate
The University of Queensland, School of Social Work & Human Services

Grant amount:

$5,000

Young people with an intellectual disability leaving out-of-home care are a vulnerable group. Transitioning to adulthood is a difficult process and many young people experience negative adult life outcomes and become engaged with tertiary systems and crisis support services. Policy and service systems struggle to identify and respond effectively to this group. This study will generate knowledge about the needs of such young people in order to develop improved policy and social work practice responses to support their successful transition to adulthood.

2016 Non-Profit Organisation Award

“Waminda Grounds Maintenance Service”

Applicant:

Waminda Services Limited, Dalby, Queensland

Grant amount:

$12,070

Waminda Services has established a Grounds Maintenance Service through which to raise income to support their disability service provision, assist the local community, and employ staff both with and without a disability (including people with intellectual disabilities) within this service. Funding from this award will be used to purchase equipment for staff to use within the Grounds Maintenance Service, as the current equipment they possess is not powerful or reliable enough to tackle the type of jobs they are employed to do. With the purchase of new equipment, their work can speed up therefore increasing their capacity to tender for more work contacts from the local council. This will then allow Waminda to increase their labour force, and produce work of a higher standard.

2015 Non-Profit Organisation Award

“Bushlink – Connecting Communities through Bush and Garden Care”

Applicant:

Northside Enterprise Incorporated, Brookvale, NSW

Grant amount:

$9,816.10

Since January 2009, Bushlink, a social enterprise, has provided paid employment opportunities for adults with intellectual disability to carry out bush regeneration work while increasing their community participation. In addition to fulfilling a range of bush regeneration and gardening contracts, the social enterprise runs Corporate/Community Volunteering days at local bushcare sites where staff members teach the volunteers how to care for the environment. Bushlink also runs a Program for Schools, in which staff teach school students how to plant, weed and mulch in the school’s bushland and gardens. The funds sought are to purchase tools and equipment, specialised uniforms and marketing materials to enable Bushlink to expand its services and roll out programs to a greater number of schools and businesses.

“Compass Institute’s “Rakes and Panes” Social Enterprise expansion”

Applicant:

The Compass Institute Inc., Hunchy, QLD

Grant amount:

$3,756

The Compass Institute is a Sunshine Coast based organisation that supports people with an intellectual and/or physical disability. In addition to education, training and pre-vocational services and community participation and living solutions, Compass runs five micro-businesses which provide flexible employment to over 30 people with disabilities. The funding requested relates to one of these businesses, the Compass Lawn and Gardens service "Rakes and Panes", which offers home maintenance to the elderly and people with a disability at discounted rates. Rakes and Panes staff members currently have the use of four different types of second hand mowers. The mowers all require different fuel and start procedures, which have proven difficult for people with an intellectual impairment to master. The funding requested is to purchase four new Honda mowers to support the workers’ independence.

“PWS Training Without Borders”

Applicant:

Prader-Willi Syndrome Association of Victoria, Kew, VIC

Grant amount:

$6,877.42

PWSA Victoria is a support group that provides education and support to enhance the lives of individuals living with Prader-Willi Syndrome (PWS). The PWS Training without Borders project aims to significantly improve health, education and lifestyle outcomes for people with PWS, by developing and providing specialist training and resources about how to provide a PWS friendly environment. The target of these educational initiatives will include families, carers and educators who otherwise receive no specific support or education from Government or health authorities. Planned activities will include several targeted training sessions (in person and video conferencing) and the creation of a suite of online resources (including videos and information for the broader community).

2014 Non-Profit Organisation Award

"ConnectABLE"

Applicant:

Mid North Coast Community Care Options Inc., Coffs Harbour, NSW

Grant amount:

$20,000

Many people with a disability experience barriers to community participation. Research conducted by Mid North Coast Community Care has shown that many social, sporting and recreational groups within the Coffs Harbour and Bellingen LGAs identify as “disability friendly” but are not necessarily ready to include members with specific support needs and/or are uncertain about how to do this. The proposed project will build community capacity for the inclusion of people with a disability through a series of education workshops and the production of a documentary film about how to promote meaningful participation.

Key Project Outputs:
ConnectABLE resources for clubs and groups are available here.

"The Able Bake House"

Applicant:

Melba Support Services, Mt Evelyn, VIC

Grant amount:

$4,000

The Able Bake House is a Social Enterprise that produces a unique range of gourmet cookies and slices. The Bake House provides paid employment opportunities and a means for people with a disability to actively participate in baking, packaging, marketing, sales and delivery. The Bake House has received external recognition of their work and is currently being used as an international case study by the Social Enterprise International Academy. The Endeavour Foundation Endowment Challenge Fund grant will enable the purchase of new kitchen equipment and fund the development of marketing materials to increase the sustainability of the Bake House into the future.

"Equipment for players with a disability"

Applicant:

Caboolture Disability Indoor Cricket Inc., Caboolture, QLD

Grant amount:

$800

Caboolture Disability Indoor Cricket was established in 2006 to enable people with a disability to be part of a sporting organisation, participate in local games, and be coached in a pathway to state representative level. The organisation sought a small injection of funding to purchase cricket bats and protective equipment to support the players’ participation in cricket.

2013 Non-Profit Organisation Award

"Camp Warami"

Applicant:

YMCA of Sydney, Parramatta, NSW

Grant amount:

$20,000

This project will include young people with an intellectual disability in an existing residential holiday camp program for children and young people aged 5-15 years. Currently such children have been unable to attend camps due to the staffing required to ensure that they are adequately supported. The Endowment Challenge Fund award will be used to contract formal carers to support children with a disability at four holiday camps. It will also be used to train three camp staff in a Certificate III in Disability Studies in order to sustain the inclusion of children with a disability in camps after the first year of the program.

2012 Non-Profit Organisation Award

"Finding a Way"

Applicant:

Rosie's Place, Rooty Hill, NSW

Grant amount:

$15,000

Rosie's Place is a community counselling service for children, young people and their non-offending family members who have experienced sexual assault and/or domestic violence. The Endowment Challenge Fund grant will be used to develop a personal safety program targeting young women with an intellectual disability. The project will employ a project worker to develop an eight-week programme and trial it with four small groups of 8-10 young women. A package of resources will also be developed to enable other service providers to deliver the program to this group.

2011 Non-Profit Organisation Awards

"Access 303 Sailing Dingy"

Applicant:

Sailability Bundaberg, QLD
Sailability New England, NSW

Awarded:

$8,380 each

Sailability is a non-profit, volunteer-based organisation which aims to enrich the lives of people with a disability through the activity of sailing. It is an international organisation that was introduced to Australia in 1991, and there are currently over 50 clubs around Australia. The Endeavour Foundation Endowment Challenge Fund grants enabled local clubs in Bundaberg and New England to each purchase a new Access 303 sailing dinghy.

2016 QArt Non-Profit Organisation Award

“Look Mum… No Hands!!! Accessibility for All”

Applicant:

Indel-ABILITY arts Ltd, Greenslopes, Queensland

Grant amount:

$6,500

The aim of Indel-ABILITY arts is to be the first fully professional, sustainable inclusive theatre company in Queensland, creating ‘theatre that leaves its mark’ with and by artists who identify as having disabilities. Indel-ABILITY arts sought funding to provide more accessible performance modes for their ensemble members (up skilling in AUSLAN sign language and other communication methods) as well as accessible strategies to allow audiences to access the works they produce such as subtitles, interpreting/shadow signing and audio description. Through this, they aim to provide accessible theatre experiences for everyone regardless of ability. They will also hire two new artists into their ensemble for a small period of time to give them the opportunity to test their skills in a professional environment, engage in new training techniques and to develop their own creative process in a supported environment. This will pave the way for successful partnerships and creative outlets in future.

“Creative Communication and Accessible Arts in Ashford”

Applicant:

Ashford Business Council, Ashford, New South Wales

Grant amount:

$6,500

The Ashford Business Council (ABC) supports local community clubs by sharing resource information and applying for funds that will assist the clubs and their members. They provide financial assistance and in-kind support to a number of services, clubs and businesses when opportunities arise to improve community capacity and sustainability. In collaboration with a local artist with a background working in the disability sector, the proposed project will enable the delivery of ten creative art workshops. The project will identify artists with intellectual disabilities in the community who would like to pursue their artistic skills further. Every opportunity will be taken to enhance inclusiveness and community connectedness throughout the project, for example, involving the students of the Ashford Central School to provide catering for the workshops. The finale of the project will be held at the Ashford Salami Festival in October this year, with the art work produced within the workshops to be displayed.